Went to the heart doctor for the little man and learned a few more things about the pain joy of moving. Hooray!! So I thought I wanted to share a few of the things I learned.
1. However much you think it's going to cost...triple that and you'll finally have a good estimate. If you're wrong and it's lower then you will be happily surprised. Kids are expensive!!!! But somehow everything works out.
2. Call the previous doctor's office where you used to live more than once to have them fax the records to the new office. And then call the new office to see if they received them BEFORE the appointment. I had to sit in the exam room for 45 minutes waiting for records. So I called Yale again while waiting and the lady said, oh yeah I remember, sorry I'll fax them over in a few seconds. Grrrrrrrr!!!!! I guess only the squeaky wheel gets the grease.
3. Take pleasure in the differences good or bad. I LOVE that I don't have to pay for parking at the new place. The office is smaller and the ladies at the front desk were awesome.
Heart Update
Sorry, just had to vent for a minute.
All in all it was a good experience. I have been practicing taking James' blood pressure so he wouldn't freak out at the actual appointment and it worked. He had to get it taken on his arms and legs to make sure the heart is pumping to the right places. The nurse let me take the cuffs on and off and I think that helped. I have also been using my stethoscope (yes, I have a blood pressure cuff from my days in school learning to be a medical assistant. I think Heavenly Father knew I would need that experience just for James) to listen to his heart. He actually let the doctor listen without crying, so I think the practice paid off!! The doctor said that we probably didn't need to do an echo (ultrasound of the heart) until James was 2, unless he saw something to tell him otherwise in his charts from Yale. This was marvelous news because the ridiculous cost wouldn't have to be paid until then and because he'll have to be sedated. I tried to find a way to not have to get him sedated for the echo, but the doc said that it would hopefully be the only sedated echo he would have to have. Oh well, I suppose there are worse things. Too bad I don't know how to hypnotize him or something to get him to hold still.
There is a definite murmur which is probably the leaky aortic valve, but nothing to be too concerned with right now. All in all things look good. I appreciate this new doctor and his willingness to not do unnecessary procedures. Oh, and the pediatrician referred us to a geneticist to test James for Marfan Syndrome (not sure where she got that notion), but the heart doc said that James' heart condition is a little different than typical Marfan syndrome patients and that we would be monitoring him closely enough throughout his life that if there was a correlation, we would probably catch it.
1. However much you think it's going to cost...triple that and you'll finally have a good estimate. If you're wrong and it's lower then you will be happily surprised. Kids are expensive!!!! But somehow everything works out.
2. Call the previous doctor's office where you used to live more than once to have them fax the records to the new office. And then call the new office to see if they received them BEFORE the appointment. I had to sit in the exam room for 45 minutes waiting for records. So I called Yale again while waiting and the lady said, oh yeah I remember, sorry I'll fax them over in a few seconds. Grrrrrrrr!!!!! I guess only the squeaky wheel gets the grease.
3. Take pleasure in the differences good or bad. I LOVE that I don't have to pay for parking at the new place. The office is smaller and the ladies at the front desk were awesome.
Heart Update
Sorry, just had to vent for a minute.
All in all it was a good experience. I have been practicing taking James' blood pressure so he wouldn't freak out at the actual appointment and it worked. He had to get it taken on his arms and legs to make sure the heart is pumping to the right places. The nurse let me take the cuffs on and off and I think that helped. I have also been using my stethoscope (yes, I have a blood pressure cuff from my days in school learning to be a medical assistant. I think Heavenly Father knew I would need that experience just for James) to listen to his heart. He actually let the doctor listen without crying, so I think the practice paid off!! The doctor said that we probably didn't need to do an echo (ultrasound of the heart) until James was 2, unless he saw something to tell him otherwise in his charts from Yale. This was marvelous news because the ridiculous cost wouldn't have to be paid until then and because he'll have to be sedated. I tried to find a way to not have to get him sedated for the echo, but the doc said that it would hopefully be the only sedated echo he would have to have. Oh well, I suppose there are worse things. Too bad I don't know how to hypnotize him or something to get him to hold still.
There is a definite murmur which is probably the leaky aortic valve, but nothing to be too concerned with right now. All in all things look good. I appreciate this new doctor and his willingness to not do unnecessary procedures. Oh, and the pediatrician referred us to a geneticist to test James for Marfan Syndrome (not sure where she got that notion), but the heart doc said that James' heart condition is a little different than typical Marfan syndrome patients and that we would be monitoring him closely enough throughout his life that if there was a correlation, we would probably catch it.
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